Contacts Looking for Research Partners
This is a place to announce and advertise research teams who are looking for others to partner with on demonstration projects related to the current RFP 2018 or for other precision medicine related projects. Contacts are listed in the order which they were recieved. If you are interested in adding your group to the list, then please click on this - Link - to generate a draft email that includes instructions on what information to provide. Academic and industry partners are welcome. We will remove postings after demonstration project awardees are announced.
Contact: Fabian V. Filipp
Institution/employer: UC Merced
Interest: We are seeking strong collaborators in academia and industry, where complementary approaches makes the team effort successful, durable, and a unique contribution to diversity.
Background: Fabian Filipp leads the cancer systems biology lab at UC Merced in the heart of the Central Valley of California. The demographic of patients at the local hospital includes more than 50% Hispanics and in majority patients of color. One focus of the lab is on Malignant melanoma, the deadliest form of skin cancer (top 4 killer across all cancers), is significantly higher than in other parts of California or the U.S. The group is open to investigate other cancers, while cancer disparity and impact of pigmentation as co-morbidity is a clear strength of the lab.
At UC Merced, there are four high-throughput omics platform available in house, big-data problems in cancer, and local genomics industry partners are strength.
The approach is outlined in the following recent papers on precision medicine:
Contact: Scott Sumner
Interest: We are seeking partners to collaborate on precision medicine projects that respond to CIAPM’s 2018 RFP.
Background: 2bPrecise, empowers providers with actionable, interpreted, and relevant information about their individual patients. The data is delivered in a readable and computable format within their existing clinical workflow, enabling decision-making at the point of care. The cloud-based precision medicine platform harmonizes genomic, clinical, and lifestyle data. It also brings insights into the existing (vendor neutral) EHR workflow. The platform is broad and robust, yet offering also specific narrow clinical uses cases such as Cancer as mentioned for this RFP focus.
- Powerful, practical, cross-clinical data model - synthesizing and harmonizing genomic information
- In workflow genomic interventions, only when needed – smart, seamless workflow integration
- Research-ready platform - clinical and pedigree knowledge to store and manage patient data
- Score driven prediction and findings pointing at clinical cases in which a genetic test could make a difference in precise accelerated diagnosis and optimized treatment
Contact: Camille Nebeker
Institution/employer: UC San Diego
Interest: Our group is interested in conducting research to better understand the ethical, legal and social implications of precision medicine (e.g., informed consent, data management, participant engagement) and is available to collaborate on CIAPM projects.
Background: Camille Nebeker is an assistant professor of Behavioral Medicine in the Department of Family Medicine & Public Health, School of Medicine at UC San Diego. Dr. Nebeker’s research focuses on research capacity building in community settings and the ethical dimensions (e.g., consent, privacy, data management) of emerging technologies (e.g., pervasive sensors, ubiquitous computing) used in health research. She leads the Connected and Open Research Ethics (CORE) initiative and Building Research Integrity and Capacity (BRIC) project.
Contact: Jennifer Pearce
Institution/employer: Plain Language Health
Interest: Plain Language Health is interested in helping research teams make their demonstration projects easier for patients to understand and act on. We can partner to develop accessible health literate content (informed consents, recruitment messaging, results reporting) and create engaging research experiences (patient advisory councils, focus groups, enrollment protocols).Background: Nearly half of adults in the U.S. read at or below grade level eight, yet the mean readability score for informed consents is grade level 13.1, 2 National assessments of adult literacy reveal that even well educated adults struggle with routine health information.
Understanding is a prerequisite for engagement. People of all reading abilities appreciate plain language and clarity. It promotes transparency and helps build trust among researchers, patients and their families.
Plain Language Health led patient engagement efforts in partnership with Sutter Health and UC San Francisco for the 2016 CIAPM demonstration project, Precision Medicine for MS: Making It Work.
- Communicating with patients who have limited literacy skills: report of the National Work Group on Literacy and Health. (1998). Journal of Family Practice. 46:168-176.
- Paasche-Orlow, MK, Taylor, HA, Brancati, FL. (2003). Readability standards for informed-consent forms as compared with actual readability. New England Journal of Medicine. 348:721–726.
Interest: We are seeking partners to collaborate and collect data which could be utilized in order to analyze for the project and communicate with the subjects remotely via bio sensors.
Background: eHealthVitals Solution provides a complete platform for clinicians to collect vital signs and other data to follow patients between formal interactions with the health care system (physician office and hospital visits). This continuous regular tracking of vitals, medication adherence and effectivity, daily routine and daily disease condition monitoring via the eHealthVitals solution provides opportunity to execute research projects with better data based reporting.
eHealthVitals Inc value:
- Perform early intervention
- Adjust medications
- Attend to exacerbations
- Prevent disease from progressing
- Reduce unnecessary emergency department visits
- Reduce hospitalizations and associated costs
- Stabilize, follow, and manage individuals with conditions after an acute episode (e.g., emergency room, hospital, or physician visit)
- In-home transitional care
- Face-to-face visits
- Comprehensive social assessment
- Medication reconciliation and monitoring
- Nutrition reconciliation programs
- Customized fitness advice & monitoring
The eHealthVitals solution and application can be used as a tool to both reinforce disease specific education and teach self-management skills, like the importance of taking medications regularly as prescribed and implications of lifestyle changes and choices, such as diet and exercise.
Your contact information could be here: